Comment:

This Group provides information, encouragement and understanding support for people with Ehlers-Danlos syndrome, their families, friends and Carers. The group endeavours to heighten awareness of EDS among the medical and caring professions. Booklets on EDS and Information Sheets are available, together with key-facts Medical Cards for people with EDS to carry. Biennial National Conferences are held and, alternate years, Regional Day meetings. A newsletter is produced twice yearly. There is also a 30 minute video on EDS available for sale. 

PO Box 335 

Farnham

Internet:

www.ehlers-danlos.org  

Phone:

01252-690 940 

Fax:

01252-404 573 

Contact Name:

Mr Ashley Greene 

Who is it for:

People with EDS, interested parties & med. profs 

How to Contact:

Contact direct by telephone, letter or e-mail 

Accessibility:

Not applicable 

Transport:

Cost:

A nominal charge is made for all literature  

Record updated: 17/07/2025

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