Organisation: |
Cornelia De Lange Syndrome Foundation Uk
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Comment: |
The Foundation provides a support service for medical professionals and helps run a network of professionals interested in the syndrome. There is a network of regional co-ordinators that arranges social meetings between families and there is a national conference every 18 months involving families and professionals. A quarterly newsletter is published, carrying all of the latest developments in the syndrome. The group is self-funded and the counsellors are parents of CdLS children and voluntary.
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Address:
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Tall Trees
106 Lodge Lane
GRAYS
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Internet:
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www.cdls.org.uk
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Email: |
[email protected] |
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Phone:
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01375-376439
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Fax:
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01375-376439
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Contact Name:
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JANE PEAFORD
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Who is it for:
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Diagnosed CDLS or with interest in the syndrome
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How to Contact:
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Contact the Foundation direct at above address
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Accessibility:
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Transport:
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Cost:
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Advice & support free. Donations for newsletters
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Record updated:
11/02/2025
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