Comment: | Dystonia is a little known neurological condition affecting the central nervous system and consists of a group of related movement disorders, characterised by involuntary and prolonged spasms of muscle contraction. Recent medical developments means it is now treatable, although it is not yet curable. Different medications can be used but the majority of people now opt for regular injections of Botulinum Toxin.
Action for Dystonia, Diagnosis, Education and Research (ADDER) covers the entire country but has its roots in the North East of England where it covers Northumberland, Tyne and Wear, County Durham, Cleveland and North Yorkshire. Through a member's current research, working with the Medical Profession they have a database of over two thousand people with dystonia throughout the North East and Cumbria since they started their awareness raising campaigns in 1993.
There are currently a number of different groups based on Tyneside, Teesside, Durham, Darlington, Sunderland and Cumbria. The groups are run entirely by people with dystonia or who have family members with dystonia. |
