| Organisation: | Klinefelter's Syndrome Association |
Comment: | Although Klinefelter's Syndrome is probably one of the most common chromosomal variations it is not well known to the general public or even, in many cases, to the medical profession. This is because the majority of affected males live their lives without being aware that they have an extra chromosome. Unlike Down's Syndrome and even Fragile X Syndrome there are often no very obvious physical or psychological effects.
The Klinefelters Syndrome Association (KSA) offers support and information for families affected by Klinefelters Syndrome. KSA produces a newsletter and information leaflet and maintains contact with Klinefelters Syndrome groups abroad where they exist. Sue Cook runs KSA in her spare time. |
| Phone: | 0845-230-0047 (calls charged at local rates)
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| Fax: | 01787-237460 |
Contact name: | Sue Cook |
| Address: | 56 Little Yeldham Road
Little Yeldham
Halstead
Essex
CO9 4QT
View map
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Internet: |  www.ksa-uk.co.uk
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Email: | [email protected] |
Who is it for: | Men with KS, and parents / carers of KS boys |
How to Contact: | Write to Sue with an SAE or call anytime |
Cost: | Free, but SAE required; subscription is £15.00 |
| Opening Times: | Anytime (preferably between 7:30am and 9:30pm) |
Record updated:05 Feb 2007
If the above record is incorrect please complete the update request form to advise the GUIDE Information Service. Klinefelter's Syndrome Association phone: 0845-230-0047 (calls charged at local rates) or email: [email protected] |
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