| Organisation: |
Laurence-Moon-Bardet-Biedl Society |
|
Comment:
|
The Laurence-Moon-Bardet-Biedl Society (LMBBS) supports people with Laurence-Moon-Bardet-Biedl Syndrome, their families and Carers, and provides information for them and the medical and other professions. It produces newsletters and holds an annual family day conference at which people with the syndrome, family and friends meet with interested professionals to discuss matters relating to the syndrome.
Associate membership is open to those who are interested in furthering the work of the Society.
|
| Phone: |
01633-718415
|
| Fax: |
|
Contact name:
|
Mrs. Christine Humphreys |
| Address: |
10 High Cross Road
Rogerstone
Newport
Gwent
NP10 9AD
View map
|
|
Internet:
|
www.lmbbs.org.uk
|
Email:
|
[email protected] |
|
Who is it for:
|
People with this Syndrome, family, carersand professionals
|
|
How to Contact:
|
Contact direct for further information
|
|
Accessibility:
|
Annual Family Day Conference held in accessible venue
|
| Languages: |
Languages on request - Braille, cassette tape, CD disc, e-mail
|
|
Transport: |
|
|
Cost:
|
No membership fee. Society relies on donations
|
| Opening Times: |
|
Open |
Close |
Open |
Close |
|
| Mon |
0900
|
1800
|
|
|
| Tue |
0900 |
1800
|
|
|
| Wed |
0900
|
1800 |
|
|
| Thr |
0900 |
1800
|
|
|
| Fri |
0900
|
1800
|
|
|
| Sat |
|
|
|
|
| Sun |
|
|
|
|
|
|
Record updated:
17/05/2025
If the above record is incorrect please complete the
update request form to advise the GUIDE Information Service.
Laurence-Moon-Bardet-Biedl Society
phone:
01633-718415
or email:
[email protected]
|
