| Organisation: | Laurence-Moon-Bardet-Biedl Syndrome Group |
Comment: | The full title of this group is "The Laurence-Moon-Badet-Biedl Syndrome and Retinitis Pigmentosa Group".
The Group provides information and support to people with Laurence-Moon-Bardet-Biedl Syndrome, their families and Carers. The Retinitis Pigmentosa Society also provide a Helpline, support and information for people with Retinitis Pigmentosa and they have a Parent-line group which meets once a year at Blackpool. |
| Phone: | 01244-680453
|
Contact name: | Mrs. Beryl Duggan |
| Address: | 32 Selkirk Road
Curzon Park
Chester
CH4 8AH
View map
|
Email: | [email protected] |
Who is it for: | People with Laurence-Moon- Bardet-Biedl syndrome and Retinitis Pigmentosa |
How to Contact: | Contact direct (in evenings) for further information |
| Opening Times: | Office open during week, but please call evenings only |
Record updated:05 Jun 2006
If the above record is incorrect please complete the update request form to advise the GUIDE Information Service. Laurence-Moon-Bardet-Biedl Syndrome Group phone: 01244-680453 or email: [email protected] |
