| Organisation: |
Stickler Syndrome Support Group |
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Comment:
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Stickler syndrome is a genetic progressive condition which affects the bodys collagen (connective tissue). Recent research has shown that a defective gene called COL2A1 on chromosome 12 is a cause in some patients and investigations are continuing into other candidate genes. The Support Group offers:
information and support for people affected by Stickler syndrome, and for professionals;
leaflets and booklets about different aspects of Stickler syndrome
a medical professionals' booklet:
a booklet for teachers;
a booklet for the seven to twelve year old with the condition;
bi-annual conference for members and professionals and a quarterly Newsletter.
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| Phone: |
01932-267635
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| Fax: |
01932-267635 |
Contact name:
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Wendy Hughes |
| Address: |
P.O. Box 371
Walton On Thames
Surrey
KT12 2YS
View map
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Internet:
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www.stickler.org.uk
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Email:
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[email protected] |
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Who is it for:
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Individuals and Families with Stickler Syndrome, and medical professionals and health care professionals
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How to Contact:
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Contact direct for further information
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Accessibility:
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No
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| Languages: |
N/A
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Transport: |
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Cost:
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One off fee £10 per household
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| Opening Times: |
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Open |
Close |
Open |
Close |
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| Mon |
1000
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1600
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| Tue |
1000 |
1600
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| Wed |
1000
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1600 |
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| Thr |
1000 |
1600
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| Fri |
1000
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1600
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| Sat |
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| Sun |
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| Ansaphone is on when no one is in the office. |
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Record updated:
02/11/2025
If the above record is incorrect please complete the
update request form to advise the GUIDE Information Service.
Stickler Syndrome Support Group
phone:
01932-267635
or email:
[email protected]
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