| Organisation: | Society for Mucopolysaccharide Diseases |
Comment: | The Society provides information and support to families and carers of children or adults with MPS or related conditions. Parents, carers and professionals can also contact the twenty four hour counselling service by letter, telephone or e-mail. A number of publications are available, including information booklets, factsheets and a quarterly newsletter. Society activities operate throughout the year including regional events, specialist clinics, information days and conferences. |
| Phone: | 0845-389-9901
|
| Fax: | 0845-389-9902 |
Contact name: | Christine Lavery MBE |
| Address: | MPS House, Repton Place
White Lion Road
Amersham
Buckinghamshire
HP7 9LP
View map
|
Internet: | www.mpssociety.co.uk |
Email: | [email protected] |
Who is it for: | Children and adults with MPS or related conditions |
How to Contact: | Contact the Society direct |
Accessibility: | Yes - for all venues used, and ground floor of office; disabled toilet |
| Languages: | Video, written information |
Cost: | Free to affected individuals and their families |
| Opening Times: | | Open | Close | Open | Close | |
| Mon | 0900 | 1700 | | |
| Tue | 0900 | 1700 | | |
| Wed | 0900 | 1700 | | |
| Thr | 0900 | 1700 | | |
| Fri | 0900 | 1700 | | |
| Sat | | | | |
| Sun | | | | |
| Out of hours helpline - evenings 7:00 to 10:00pm, weekends 7:00am to 10:00pm |
Record updated:12 Apr 2007
If the above record is incorrect please complete the update request form to advise the GUIDE Information Service. Society for Mucopolysaccharide Diseases phone: 0845-389-9901 or email: [email protected] |
