| Organisation: | British Malignant Hyperthermia Association |
Comment: | The British Malignant Hyperthermia Assocaiation provides information and support to those affected by this inherited condition.
Malignant Hyperthermia (MH) is an hereitary problem causing contracture of muscle and disruption to metabolic functions during general anaesthesia. It is undetectable until a family member reacts under anaesthesia. Diagnosis is by muscle biopsy at the MH Investigation Unit in Leeds. Once diagnosed, MH susceptible people can have anaesthetics, provided triggering drugs are avoided and correct monitoring is undertaken. MH is potentially fatal if undetected by the anaesthetist.
Links between affected families are encouraged so that mutual experiences can be shared. A number of information pamphlets and leaflets are available. In addition, basic information for the medical profession are provided in a number of other languages. A newsletter is published three times a year. Medical emergency discs are also provided to members at £9.50 each. The BMHA actively supports MH research. |
| Phone: | 01773-717901
|
Contact name: | Alison Winks |
| Address: | 11 Gorse Close
Newthorpe
Nottingham
NG16 2BZ
View map
|
Internet: |  www.bmha.co.uk
|
Email: | [email protected] |
Who is it for: | Anyone affected by this condition, their families and carers |
How to Contact: | Contact the Association direct for further information |
| Languages: | European Languages - emergency cards |
Cost: | £15.00 to join, £10.00pa subsequently |
| Opening Times: | No specific hours (not an office) - ansaphone when not available |
Record updated:20 Nov 2006
If the above record is incorrect please complete the update request form to advise the GUIDE Information Service. British Malignant Hyperthermia Association phone: 01773-717901 or email: [email protected] |
