Guide Database


Search: Location:

Organisation:HITS (UK) Family Support Network 

Comment:

HITS (UK) Family Support Network provides information, advice and support to families and carers of children with Hypomelanosis of Ito (HI). The Network aims to support families affected by HI by letter, telephone, e-mail, a yahoo chat group, family days and two newsletters a year. Bringing families together often reduces the sense of isolation felt. HITS is now supporting families in twenty one countries.

HI is a neurocutaneous syndrome of streaky, patchy, whorl-like, or linear macular hypopigmentation of the skin, often associated with seizures, developmental and intellectual retardation and other anomalies.

There is also the Ito Helpline (020-8352-1824) which is manned most Tuesday evenings (UK Time only) from 7:00 to 9:00pm - The helpline is only manned at these times; please do not call this number outside of these hours. 

Phone:01803-401018 (National Contact and Co-ordinator )
07940-114943 (London Contact - Terri Grant ) 
Address:

99 Great Cambridge Road

London

N17 7LN
View map 

Internet:

Logo of HITS (UK) Family Support Networkwww.e-fervour.com/hits  

Who is it for:

Families and carers of children with the condition 

How to Contact:

Self referral, or via GP, Social Worker, Hospitals, etc. 

Cost:

Donations only 

Opening Times: OpenCloseOpenClose 
Mon 0900 1700  
Tue 0900 1700  
Wed 0900 1700  
Thr 0900 1700  
Fri 0900 1700  
Sat    
Sun    

Record updated:07 Mar 2006 


If the above record is incorrect please complete the update request form to advise the GUIDE Information Service.

HITS (UK) Family Support Network phone: 01803-401018 (National Contact and Co-ordinator )