Comment: | The Fragile X Society is a registered charity providing support and information to the families and carers of anyone with Fragile X Syndrome, and anyone who is interested or comes into contact with the syndrome. Publications available include a newsletter that is produced twice a year, and detailed information booklets, leaflets, and papers. A number of activities are held throughout the year including national conferences and regional meetings. Information and membership is free to Fragile X families.
Four helplines are available for specific information:
+ general enquiries and welfare benefits - 01371-875100;
+ education and statementing - 02920-575515 (after 6:00pm);
+ family support for epilepsy - 01142-745390;
+ support services for adults - 01371-875100. |
