| Organisation: | Telangiectasia Self Help Group |
Comment: | A self help group that provides information and support to people with Familial Haemorrhagic Telangiectasia, their families and Carers. The group links families in a similar situation together, so that mutual experiences can be shared. A newsletter is sent to all members on an occasional basis informing them of developments in the treatment of the disease.
The Telangiectasia Self-Help Group is also affiliated to these Support Groups:
+ Contact a Family;
+ Genetic Interest Group;
+ HHT (Hereditary Haemorrhagic Telangiectasia) Foundation International, Inc. |
| Phone: | 01494-528047
|
Contact name: | Mrs. Diana Lawson |
| Address: | 39 Sunny Croft
Downley
High Wycombe
Buckinghamshire
HP13 5UQ
View map
|
Internet: | www.telangiectasia.co.uk |
Email: | [email protected] |
Who is it for: | Those with Familial Haemorrhagic Telangiectasia |
How to Contact: | Contact the Group direct on the above number |
Cost: | Membership, advice and info is free, donations gratefully received |
| Opening Times: | Monday to Friday 9:00am to 5:00pm |
Record updated:16 Nov 2006
If the above record is incorrect please complete the update request form to advise the GUIDE Information Service. Telangiectasia Self Help Group phone: 01494-528047 or email: [email protected] |
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