Guide Database

Organisation:	FSH Muscular Dystrophy Support Group
Comment:	Facio Scapulo Humeral (FSH) Muscular Dystrophy is a muscle wasting condition, caused by a genetic fault affecting one of the proteins of the muscles. The FSH Muscular Dystrophy Support Group is a self help group providing advice and support to families and carers of children and adults with Facio Scapulo Humeral Muscular Dystrophy. Informal meetings are held once a year. Individuals may also like to contact an Information Officer based at the Muscular Dystrophy Group of Great Britain and Northern Ireland at 7-11 Prescott Place, London, SW4 6BS - telephone number 020-7720-8055 (see separate record).
Phone:	020-8950-7500
Fax:	020-8950-7300
Contact name:	Mrs. Lorraine Jonas
Address:	8 Caldecote Gardens Bushey Heath Bushey Hertfordshire WD23 4GP View map
Internet:	www.fsh-group.org
Email:	[email protected]
Who is it for:	Children and adults with FSH Muscular Dystrophy
How to Contact:	Contact the Group direct on the above number
Cost:	No Charge
Opening Times:		Open	Close	Open	Close
	Mon	0900	2100
	Tue	0900	2100
	Wed	0900	2100
	Thr	0900	2100
	Fri	0900	1800
	Sat
	Sun	1000	1600

Record updated:05 Mar 2007 If the above record is incorrect please complete the update request form to advise the GUIDE Information Service. FSH Muscular Dystrophy Support Group phone: 020-8950-7500 or email: [email protected]

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