Guide Database

Organisation:	National Society For Phenylketonuria Ltd.
Comment:	NSPKU is a registered Charity formed in 1973 to help and support parents and patients. They hold an Annual Conference - Holiday Weekend, and several study days throughout the year, organised by local support groups. Membership is £17.00 for parents and patients, and £25.00 for medical professionals. Several information leaflets and booklets are produced and there is a quarterly newsletter - News and Views. The Society has links with similar organisations across Europe and can provide contact names for many European countries.
Phone:	0845-603-9136 (twenty four hour helpline)
Fax:	0845-004-8341
Contact name:	Lucy Welch
Address:	PO Box 26642 London N14 4ZF View map
Internet:	www.nspku.org
Email:	[email protected]
Who is it for:	All patients and parents, carers and health professionals
How to Contact:	Contact the Society direct
Cost:	Annual membership £17.00 per family
Opening Times:	24 Hour ansaphone
Record updated:12 Jun 2006 If the above record is incorrect please complete the update request form to advise the GUIDE Information Service. National Society For Phenylketonuria Ltd. phone: 0845-603-9136 (twenty four hour helpline) or email: [email protected]

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