Comment: | The Neurofibromatosis Association supports people who have Neurofibromatosis (NF). It promotes genetic research into NF1 and NF2. They have a medical advisory board, a professional mailing list, funds research grants, overseas contacts, promotes speakers at professional symposiums and seminars. The Neurofibromatosis Association acts as a mutual support group for parents and patients, and promotes awareness of this condition. Funds are raised to support research. The Association also liaises for medical professionals and organisations. They produce quarterly publications plus Fact Sheets. Nf specialist advisors are available at regional genetic centres - please contact Head Office for details.
There are also local Neurofibromatosis Association groups - to find your nearest group, please contact the Volunteer Development Manager at the Head Office on [email protected]
|
