Comment: | This Group provides information, encouragement and understanding support for people with Ehlers-Danlos Syndrome (EDS), their families, friends and Carers. The group endeavours to heighten awareness of EDS among the medical and caring professions. Booklets on EDS and Information Sheets are available, together with key-facts Medical Cards for people with EDS to carry. Biennial National Conferences are held and, alternate years, Regional Day meetings. A newsletter is produced twice yearly. There is also a thirty minute video on EDS available for sale. |
