| Organisation: | Cornelia de Lange Syndrome Foundation UK |
Comment: | The Cornelia de Lange Syndrome Foundation (CdLS) provides a support service for medical professionals and helps run a network of professionals interested in the syndrome. There is a network of regional co-ordinators that arranges social meetings between families and there is a national conference every eighteen months involving families and professionals. A quarterly newsletter is published, carrying all of the latest developments in the syndrome. The group is self-funded and the counsellors are parents of CdLS children and voluntary. |
| Phone: | 01375-376439
|
| Fax: | 01375-404478 |
Contact name: | Jacquie Griffin |
| Address: | Tall Trees
104 Lodge Lane
Grays
Essex
RM16 2UL
View map
|
Internet: |  www.cdls.org.uk
|
Email: | [email protected] |
Who is it for: | Diagnosed CdLS or with interest in the syndrome |
How to Contact: | Contact the Foundation direct at above address |
Cost: | Advice and support free. Donations for newsletters |
| Opening Times: | | Open | Close | Open | Close | |
| Mon | 0900 | 1800 | | |
| Tue | 0900 | 1800 | | |
| Wed | 0900 | 1800 | | |
| Thr | 0900 | 1800 | | |
| Fri | 0900 | 1800 | | |
| Sat | | | | |
| Sun | | | | |
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Record updated:04 Jun 2007
If the above record is incorrect please complete the update request form to advise the GUIDE Information Service. Cornelia de Lange Syndrome Foundation UK phone: 01375-376439 or email: [email protected] |
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