Comment: | The Gorlin Syndrome Group aims to offer support to individuals and their immediate families by means of the Group Helpline, Newsletters, annual meetings (usually held in October or November) and contact with other affected individuals and medical professionals. They also aim to provide patients and those who care for them with information about Gorlin Syndrome, how to cope, treatments plus new medical advances in research and treatment. The Group aims to increase awareness and educate individuals, professionals and the public at large about Gorlin Syndrome. |
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