Comment: | This self-help group offers information and advice to families and Carers of children and adults with a craniofacial disorder, including Aperts Syndrome, Crouzons Syndrome, Pfeiffers Syndrome, Saethre Chotzen Syndrome, Van Buchen Syndrome and any conditions and syndromes having cranio-synostosis as a common feature. Contact between families is encouraged for friendship and the sharing of mutual experiences. Activities are held throughout the year, including a Summer picnic meeting and Annual General Meeting. A newsletter is also published. |
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