Comment: | The Pemphigus Vulgaris Network provides a forum for people with Pemphigus Vulgaris (PV) and those personally or professionally concerned with it (and also provides support for people with Pemphigus Foliaceus and Cicatricial Pemphigoid). It gives people an opportunity to exchange contact details, so that there is someone else to talk to when PV patients need that, helps people find information they may want, and offers general support.
The Network is on the British Association of Dermatologists Support Group Register and is an associate of the International Pemphigus Foundation (IPF) in the USA. The Network has no funding whatsoever, so an SAE is essential and a contribution would be appreciated.
They have their own web site (www.pemphigus.org.uk) and suggest people also look at the IPF website at www.pemphigus.org |
