| Organisation: |
Little Hearts Matter |
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Comment:
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Little Hearts Matter is a support group for children who have a single ventricle heart condition, such as Hypoplastic Left Heart Syndrome, Tricuspid Atresia, Double Inlet Ventricle or Pulmonary Atresia. The charity provides support and information for their families through:
support and advice through twenty four hour helplines;
information on diagnoses and treatment in an easy-to-understand format (folder or website);
putting families in touch with others with similar experiences;
regular members' newsletters;
education events for families to meet and learn from medical experts;
specific bereavement support for bereaved families;
raising the profile of these conditions to ensure the children's special needs are more widely understood;
building relations with the medical world to increase awareness of single ventricle disorders;
events for the children to experience new activities and make new friends.
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| Phone: |
0121-455-8982
0845-330-9801
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| Fax: |
0121-455-8983 or 0845-3309802 |
Contact name:
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Suzie Hutchinson |
| Address: |
11 Greenfield Crescent
Edgbaston
Birmingham
B15 3AU
View map
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Internet:
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www.lhm.org.uk
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Email:
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[email protected] |
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Who is it for:
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Families of children born with single ventricle disorders
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How to Contact:
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Call the numbers above, or call the Support and Information Line: 0121-456-4521
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Accessibility:
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| Languages: |
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Transport: |
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Cost:
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| Opening Times: |
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Open |
Close |
Open |
Close |
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| Mon |
0930
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1630
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| Tue |
0930 |
1630
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| Wed |
0930
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1630 |
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| Thr |
0930 |
1630
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| Fri |
0930
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1630
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| Sat |
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| Sun |
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| Ansaphone out of hours directs callers to a support line |
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Record updated:
11/12/2024
If the above record is incorrect please complete the
update request form to advise the GUIDE Information Service.
Little Hearts Matter
phone:
0121-455-8982
or email:
[email protected]
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