| Organisation: | Batten Disease Family Association |
Comment: | The principal aim of the Batten Disease Family Association (BDFA) is to provide contact and support to families affected by the disease and to improve the level of information available to such families. They provide information on Batten Disease and available services such as education, benefits and equipment and organise conferences for professionals, families and carers.
The Association is based at Heather House which is a residential facility in the south of England purpose built by seeAbility for young adults with visual impairments and profound multiple disabilities or degenerative conditions - particularly those with Juvenile Batten disease. |
| Phone: | 07914-060742
|
Contact name: | Rachel Griffith |
| Address: | c/o Heather House
Heather Drive
Tadley
Hampshire
RG26 4QR
View map
|
Internet: |  www.bdfa-uk.org.uk
|
Email: | [email protected] |
Who is it for: | Families affected by Batten Disease |
How to Contact: | In writing, by e-mail or phone, or via the internet |
| Opening Times: | | Open | Close | Open | Close | |
| Mon | 0900 | 1700 | | |
| Tue | 0900 | 1700 | | |
| Wed | 0900 | 1700 | | |
| Thr | 0900 | 1700 | | |
| Fri | 0900 | 1700 | | |
| Sat | | | | |
| Sun | | | | |
| Please leave message on mobile - all calls will be returned |
Record updated:27 Jun 2006
If the above record is incorrect please complete the update request form to advise the GUIDE Information Service. Batten Disease Family Association phone: 07914-060742 or email: [email protected] |
