Comment: | The Network was established in 1995 by relatives of people who have died from Creutzfeldt-Jakob Disease (CJD).
It provides support and information for families and carers of people with CJD, offers emotional support for carers and a link to families with similar experiences and financial support to those in need. The Network aims to promote good quality care, provide accurate unbiased information and promote research into all forms of CJD).
They produce a newsletter and various information booklets and sheets and also provide training on CJD for professionals. |
