Comment: | The CHARGE Family Support Group believes that chatting with other parents and carers provides a unique and much needed opportunity to share anecdotal information.
CHARGE is the name given to a condition that has a number of associated anomalies. The cause of CHARGE is still unknown. It is a rare condition that can affect different parts of the body. The initials of the most common features make up the name.
The Family Support Group offers the chance for people to tell their own stories and give support to each other.
Getting to meet children and adults across the broad range of CHARGE helps people get a better perspective on the condition. It also serves to break down the isolation that can be felt by many carers.
For parents of very young children, it gives hope for the future which is crucial, especially in the early days after diagnosis.
The group produces a newsletter three times a year and arranges an annual get-together at various locations in the UK. Membership of the group is free, but it relies on donations to function. |
